Terrence Higgins Trust launches project to preserve, archive and learn from data contained within old myHIV forum

Graham Robson April 14, 2023

HIV/sexual health charity Terrence Higgins Trust has announced it is embarked on a project to preserve, archive and learn from the data contained within its old myHIV forum, which was online from 2011 to 2019.

This is in partnership with the NHS Health Economics Unit (HEU), part of the NHS Midlands & Lancashire Commissioning Support Unit (MLCSU).

The myHIV forum allowed people living with HIV to talk and support one another about everything from diagnosis and medication to experiences of relationships and stigma.

Terrence Higgins Trust say: “The objective of this project is to create an archive product that will serve as a record of the forum for anyone interested in the history of HIV and the impact of digital health communities on patient-centred care.

“The old forum is a valuable piece of history and we hope that the lessons learned from this archive around the benefits of peer support and how this impacts the lived experience of HIV, can help shape future healthcare practices and better service the needs of those living with HIV and others with long-term health conditions.

“We’ll be communicating our findings once we complete the project.

“Our current forum can be found at My Community Forum.”

For more info on the project, CLICK HERE