Myalgic encephalopathy (ME) or chronic fatigue syndrome (CFS) that can sometimes follow a viral infection or trauma is classified as a neurological disorder and affects nearly 4,000 adults and children across Sussex.
ME/CFS guidelines are available for the medical profession and some NHS specialist services are operational including those in Sussex that are helping many patients towards better health. Symptoms include profound physical and mental fatigue, concentration and working memory difficulties, muscle pain, sleep and mood disturbances along with gastric problems. The symptoms, that vary and fluctuate, can be exacerbated by over exertion or stress. With good management, many patients can significantly improve.
The Sussex ME/CFS Society is the registered charity that informs, supports, and represents many of those suffering from the illness. We also have people affected by fibromyalgia and long Covid amongst our membership. Our members are affected to differing degrees with a good number being virtually house-bound and in need of care. We work collaboratively with NHS services and the Brighton and Sussex medical school who are carrying out research into the condition.
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