Around three-quarters of people with ME report problems with their eyes and vision – but you wouldn’t know it from the mainstream scientific literature. There is very little formal published evidence that these symptoms exist, despite the fact they greatly affect quality of life and can be easily measured. This means that there is no solid, evidence based scientific data to back up patients’ reports of their disabling visual disturbances. For that reason, ME Research UK has awarded a grant to the University of Leicester to identify and quantify vision-related problems in the disease.