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UK moves towards elimination of HIV transmission

NAM, NAT, BHIVA and BASHH issue joint statement welcoming new data from Public Health England that gives hope that HIV can be conquered.

The new HIV data marks a turning point in the UK’s efforts to combat HIV. The findings in the report Towards elimination of HIV transmission, AIDS and HIV-related deaths in the UK confirm that the reduction in the number of new HIV diagnoses observed in 2016 represents a breakthrough in our ability to prevent new infections.

For the first time since the beginning of the UK epidemic, the number of HIV diagnoses in gay and bisexual men has fallen.

Overall, the 5,164 HIV diagnoses in 2016 represent an 18% decline on the 6,286 diagnoses in 2015.

Among gay and bisexual men the decline was even steeper, with a decrease of 21% to 2,810 in 2016 from a high of 3,570 in 2015. The decline in new HIV diagnoses in gay and bisexual men is particularly apparent in London, where diagnoses decreased by 29%.

The findings were welcomed by HIV activists and healthcare providers, including NAT (National AIDS Trust), NAM aidsmap, the British HIV Association (BHIVA) and the British Association for Sexual Health and HIV (BASHH).

For the first time, the overall mortality rate of people with diagnosed HIV aged 15-59 years who were diagnosed promptly was comparable to that of the general population of the same age-group.

Public Health England (PHE) report that with progressive strengthening of combination prevention (including condom use, expanded HIV testing, prompt treatment and availability of pre-exposure prophylaxis [PrEP]), HIV transmission AIDS and HIV-related deaths could be eliminated in the UK. However, the recent encouraging changes are dependent upon sustained prevention efforts.

Matthew Hodson
Matthew Hodson

Matthew Hodson of NAM aidsmap, said:The progress we have made in diagnosing, treating and preventing HIV has been astonishing. Twenty-one years ago an HIV diagnosis was considered a death sentence but now life expectancy for someone promptly diagnosed and on treatment is the same as for someone who remains uninfected.”

HIV treatment is now so effective that those who are treated and have an undetectable viral load will not pass the virus on to their sexual partners,” Hodson continues. “This knowledge strikes to the heart of much of the stigma that people like me, who are living with the virus, experience. I’m delighted that PHE acknowledge that effective treatment can prevent transmission, even for people who have sex without condoms. It’s vital that people with HIV and our sexual partners know that undetectable means untransmittable.”

The UNAIDS 90-90-90 targets were achieved in London in 2016 for the first time, with 90% of Londoners living with HIV infection diagnosed, 97% of those people diagnosed receiving treatment and 97% of people receiving treatment being virally suppressed to the point where they cannot transmit the virus to sexual partners. The equivalent figures for the whole of England were 88%, 96% and 97% respectively.

Although much of the data in the PHE report is encouraging, the number and proportion of diagnoses made at a late stage of HIV infection remain high, particularly among heterosexual men and women. People diagnosed late remain at high risk of death in the first year of diagnosis and of serious ill-health in succeeding years.  They have also spent a longer period unaware of their HIV-positive status with possible risks of transmission to sexual partners.

Deborah Gold
Deborah Gold

Deborah Gold of NAT said: “We are at a turning point in the story of HIV in the UK.  We must not squander the incredible opportunities this progress provides.  We need to see the recent amazing falls in HIV diagnoses among London gay men replicated across the country and in other communities at risk.  Two things in particular are needed to make that happen. Public health funding must be in place for a national upscaling of HIV testing services, which are currently failing to meet both demand and need.  And secondly, PrEP must be made available for all at risk of HIV, going beyond the current capped provision of the PrEP IMPACT trial.”

Prof Chloe Orkin
Prof Chloe Orkin

Professor Chloe Orkin of the British HIV Association (BHIVA), added:The report shows just what we can achieve; a normal life expectancy and the ability to prevent onward transmission. But these possibilities make it more important than ever that we normalise HIV testing and recommend it to our patients.”

Increased testing and rapid access to treatment has played a central role in the decline in HIV diagnoses. Such gains are threatened as sexual health services close and waiting lists for appointments increase.

Professor Orkin continued: “In 2017 there is no good reason why any healthcare professional should not be able to offer and recommend HIV testing to their patients, yet time and time again it doesn’t happen, with tragic consequences.”

Valerie Delpech
Valerie Delpech

Valerie Delpech of Public Health England, said:We celebrate these extraordinary findings which are the result of many years of work involving many key players and organisations from the whole HIV sector.  By continuing to invest in effective preventative measures including condom use, expanded HIV testing, prompt treatment and the use of PrEP, HIV transmission, AIDS and HIV-related deaths could well be eliminated in the UK in the next few years.”

Dr Elizabeth Carlin, President of the British Association for Sexual Health and HIV, added: “These new reports from Public Health England show that we are now on the cusp of eliminating onward transmission of HIV and HIV-related deaths in the UK, which is a truly remarkable prospect. As a next step, we call upon the Government to ensure that appropriate levels of funding are in place to support the availability of increased testing and rapid access to treatment, including the national roll-out of PrEP for all those at risk.”

Prime Minister and party leaders unite against HIV stigma on World AIDS Day

Video messages from Theresa May, Jeremy Corbyn, Nicola Sturgeon and Vince Cable, were released on December 1, to mark World AIDS Day.

The Prime Minister, Theresa May MP
The Prime Minister, Theresa May MP

To view the messages show the party leaders united against HIV stigma, click here:

The Prime Minister, Theresa May MP, optimistic about an AIDS-free future, said: “Men and women who a generation ago would have been lost are today leading happy and productive lives, making an enormous contribution to our world…And if we can succeed in making testing and treatment available to all, a final end to HIV transmission, and the reality of an AIDS-free generation is within our grasp.

“As we continue our work towards that goal, we must also bring an end to the stigma which still blights the daily lives of many people with HIV.”

Jeremy Corbyn MP
Jeremy Corbyn MP

Leader of the Opposition, Jeremy Corbyn MP, warned that cuts could jeopardise recent progress on lowering HIV transmission: “Since the last World AIDS Day there’s been a reported fall in the number of people being diagnosed with HIV for the first time since the 1980s. Frequent testing and the HIV prevention drug PrEP are major contributing factors.

“But in some parts of our country, cuts of more than 20% have already lead to GUM service closures and £531million more will be cut from the public health budgets in this parliament. These cuts will impact on HIV transmission rates right at the moment our efforts are beginning to pay off.”

Leader of the Scottish National Party, Nicola Sturgeon MSP, encouraged people to fight stigma and misinformation as a tribute to those lost to AIDS: “A sense of stigma still stops many people from getting tested, and that means they will miss out on early diagnoses and don’t receive the treatment that they need. So, it’s really important that we address that stigma by tackling the remaining myths and prejudices that underpin it and by learning and sharing the facts about HIV.”

Vince Cable MP
Vince Cable MP

Leader of the Liberal Democrats, Vince Cable MP, thanked those involved in fighting HIV, and echoed the 2017 World AIDS Day theme Let’s End It: “Let’s use this day to pay tribute to those who lost their lives to HIV and AIDS and I’d also like to thank the researchers, campaigners, and advocates who’ve dedicated their lives to this battle in the hope that future generations do not have to know the pain and suffering caused by HIV and AIDS. It’s clear we have an immediate and urgent task to do if we are to eradicate this disease. So, let’s all work together to end the transmission, the fear, and the stigma of AIDS for once and all. Let’s end it.”

Deborah Gold
Deborah Gold

Chief executive of NAT (National AIDS Trust), Deborah Gold, said: “Political leadership on HIV is absolutely essential. We are at a turning point with HIV, with diagnoses reducing for the first time ever in some groups. But at the same time critical services for people living with HIV are struggling under financial pressure. We cannot rest on our laurels and we’re pleased that political leaders have marked World AIDS Day by saying just that – we must hold them to their word.”

National AIDS Trust tackle HIV fake news

National AIDS Trust (NAT) set out to tackle fake news on World AIDS Day, December 1.

A review of UK media coverage of HIV revealed that myths and stigma, reminiscent of the ignorance of the 80s, are still rife in the press.

NAT examined 400 online news stories from recent months. 13% of national stories contained misinformation or stigmatising language. And in local news, more than a third (35%) of stories that mentioned HIV transmission gave incorrect information.

Deborah Gold
Deborah Gold

Deborah Gold, Chief Executive at NAT, said: “News stories that erroneously refer to spitting or biting as an HIV transmission risk are a common issue NAT comes across – the prevalence of these myths in the media only increases fear and stigma around HIV. It’s worrying that the proportion of people who wrongly think HIV can be transmitted in these ways has increased in recent years.”

NAT is concerned that press do not always project the true context of HIV in the UK today, where it is considered a long-term manageable condition.

The fact that most people living with HIV cannot transmit the virus due to effective treatment, is underappreciated. The charity is therefore calling on journalists to ensure that their reporting is up to date with the latest facts.

Additionally, NAT came across news reports that disclosed the HIV status of individuals, despite it having no relevance to the stories in question.

On this Deborah added: “HIV is a medical condition, unless someone wants to talk about it, it should be treated as a private matter. Yet we see HIV status featuring in stories where the only relevance is that a person involved in the story happens to be living with HIV.”

NAT has published new guidelines for journalists, Reporting HIV: how to get it right. The charity is working with activists, MPs and journalists to spread the word about these guidelines.

Deborah concluded: “Journalists contend with a heavy workload and a fast-paced environment. 16% of the public think you can get HIV from spitting and 36% from biting – it’s no wonder we see the same misconceptions in our press. We hope these guidelines will be a practical tool for journalists to fact check stories and avoid some of the common pitfalls. We’re hopeful that our new guidelines will be adopted and used widely by publications across the UK.”

To alert your local MP to the issue of stigmatising misinformation in your local media, click here:

People and Parliament: Remembering 30 Years of HIV and AIDS

Thirty years since the outbreak of the HIV epidemic, the UK AIDS Memorial Quilt has been on public display in Westminster Hall from November 27 to December 2.

Its purpose, to commemorate the lives of those who died, and was part of the exhibition People and Parliament: Remembering 30 Years of HIV and AIDS.

Hundreds of individuals made quilt panels in memory of loved ones who had died from AIDS in the 1980s and 1990s, inspired by a global project that started in America.

Stephen Doughty MP
Stephen Doughty MP

Stephen Doughty MP (Chair of the All Party Parliamentary Group on HIV/AIDS said: “The exhibition is both a remarkable visual testimony to the thousands of lives lost to AIDS and an important reflection on Parliament’s role throughout the HIV epidemic from the iconic 1987 tombstone adverts through to latest innovations such as HIV home testing.”

“The UK AIDS Memorial Quilt is an irreplaceable piece of international social history which tells the stories of people whose lives were lost particularly at the beginning of the AIDS epidemic. This exhibition must serve as a reminder of how far we have come in treating HIV/AIDS in the UK and the important role which Parliament has played and continues to play in ending the epidemic, but also how much more remains to be done in the UK and globally.”

David Carr, partner of Mark William Tyack, said: I met Mark in 1984. We fell in love and were partners for 7 fabulous years until he tragically died of AIDS at the age of 26.

“During Mark’s short life he fought against all forms of prejudice, and together we campaigned hard against Section 28. It’s wonderful that Parliament is today paying tribute to Mark and all those other brave people who died of AIDS and who are commemorated by these extraordinary quilts.

“When I saw Mark’s quilt again last year, for the first time since 1994, I was hugely affected. It brought back to me all the fears and suffering which people with AIDS experienced back then. Mark’s bravery in facing such an early death was extraordinary. 

“I think it’s crucial that the memorial quilts continue to be displayed, especially on World AIDS Day, so that future generations don’t forget all those people who in the early years of the virus faced such appalling discrimination and a terrifying fate.”

The historic display was organised by a coalition of charities including George House Trust, Terrence Higgins Trust, Positive East, The Food Chain, Positively UK and Sahir House, with support from the All Parliamentary Group (APPG) on HIV.

HIV has changed since the 1980s. HIV no longer stops those living with the virus leading long and healthy lives – but there is still much to be done to tackle stigma, stop transmission and diagnose the 1 in 8 who are unaware they have the virus.

You can get involved on social media using the hashtag #AIDSQuiltUK

PREVIEW: Pink Punk coronates a new Queen

Queen Zee release their latest track challenging society, Idle Crown.

Up-and-coming LGBT pink punk band Queen Zee and the Sasstones released their newest single Idle crown  on November 24 – two months after their debut album Eat my Sass.

With their 2018 tour alongside the Mamozets, the Liverpool gang are breaking down gender barriers, sharing their dysphoria with the world.

The Liverpool band are smashing down the heteronormative walls built by society, in their daring track which challenges views on gender and conformity. As the first openly Transgender Bisexual frontwoman for a predominantly male band, Queen Zee acts as the driving force for the progressive group as they tackle misogyny, transphobia, gender politics, and society’s treatment of LGBT+ people.

The track Idle Crown depicts commentary on society’s push for heteronormativity, to the point of which the damage to health it may cause is disregarded.

Zee herself explains, that: “Within ‘Idle Crown’, I used two LGBTQ+ characters trapped in a heteronormative relationship to express the pain of being unable to live as your true self”. In the current social climate, a track like this is more than needed

Branded as a ‘force to be reckoned with’ by DIY magazine, they have already taken the Punk scene to new depths, seeing commercial success with Radio One airplay. Since their formation in 2016, the unique group have performed at sold out tours with the likes of Cabbage, headlined Threshold festival and struck the stages of Glastonbury.

Their promising tour alongside the Marmozets begins February next year:

Friday 2  – Cardiff – The Tramshed

Saturday 3 – Southampton – Engine Rooms

Sunday 4 – Brighton – Concorde 2

Tuesday 6 – Cambridge – Cambridge Junction

Wednesday 7 –  London – Student Central

Thursday 8 – Nottingham – Rescue Rooms

Friday 9 – Newcastle – Riverside

Sunday 11 – Sheffield – The Leadmill

Monday 12 – Edinburgh – The Liquid Room

 

Mayor of Brighton & Hove lunches at Lunch Positive on World AIDS Day

Lunch Positive, the HIV lunch club, marked World AIDS Day 2017 on Friday, December 1, with an extra special lunch club session attended by the Mayor of Brighton Hove, Cllr. Mo Marsh.

The Mayor of the City of Brighton & Hove, Cllr Mo Marsh, fifty-four lunch club members, together with the entire volunteer team at Lunch Positive shared friendly social time together over a freshly cooked healthy meal, allowing people to commemorate World AIDS Day, in their own way.

There was reflection on the diversity of challenges that HIV can still present today, together with the advances we have seen in recent years that most would have thought impossible when first diagnosed.

For those bereaved quiet time was spent in personal thought, and many shared supportive conversations remembering those who are sadly no longer with us and the impact of loss.

The Mayor opened the lunch session with some welcoming words, including an important acknowledgement that HIV stigma sadly still exists, the impact that HIV stigma has on people’s lives and prospects, and the importance of services such as Lunch Positive.

Gary Pargeter
Gary Pargeter

Gary Pargeter, Service Manager at Lunch Positive, said: “It was a wonderful lunch club session and we are so grateful to everyone who came along and volunteered.

“As always, friendship, sense of community and genuine supportiveness was in abundance which is exactly why we are all so committed to the HIV lunch club.

“World AIDS Day is the annual community remembrance and commemoration of those we have lost, together with solidarity for those still living with HIV and the challenges that many face.

“However there isn’t a week goes by that we don’t reflect on the continuing issues that many people with HIV continue to experience including diminished health, experience of stigma and discrimination, social isolation, and the impact on daily living.

“As an HIV peer-led organisation we’re constantly striving to address and combat these. We’re honoured to know so  many people from our HIV community as lunch club members, and to be able to provide a service that brings people together in such positive ways, and means so much to so many.

Thank you to all our members, volunteers, and wonderful supporters for all you do on this special day, and all others.”

 

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