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Gay tetraplegic remains ‘trapped’ in second floor council flat

October 11 marks twelve months since we reported the plight of Robert Carver, a gay man living in Hove, suffering from a degenerating life limiting condition.

Robert Carver
Robert Carver

For the last six years, Robert Carver 32, has been living in temporary council accommodation. His second floor one bedroom flat is accessed by 28 steps but has no lift. During the last 12 months his condition has continued to deteriorated considerably, and the illness now affects his speech considerably.

Robert told Gscene at the time: “I am a paraplegic, with no use or feeling in either of my legs. I started suffering from this disease five years ago. The disease is so rare that a formal accurate diagnosis is not available, but is most likely to have been caused by a brain virus.”

For the past three years, Robert has been unable to walk or use his legs and remains “trapped” in his second floor, temporary council accommodation, with a steep, narrow staircase, which is clearly totally unsuitable for the needs of someone who cannot use their legs.

When Robert has to leave the flat for hospital appointments he is dragged across the floor by his carer and bounced down the steep staircase, often hurting himself in the process.

When he returns to the flat after medical appointments, he has to be pulled step by step up the stairs, by his carer then dragged across the floor because the flat is too small to accommodate the use of a wheelchair.

Robert’s situation was originally brought to public attention when ITV Meridan ran a news story about Robert’s plight on October 12, 2016.

A spokesperson for Brighton & Hove City Council at the time said: “We are aware that Mr. Carver’s condition has deteriorated and we also recognise that his current accommodation is unsuitable. We’ve recently acquired some emergency accommodation with wheel chair adapted units and were hoping to move him in on an interim basis in the next couple of weeks. Unfortunately there is an acute shortage of accommodation available that is suitable for his needs.”

Following that statement Robert was offered a property in Whitehawk which was not wheelchair accessible and said to be unsuitable for Robert by his occupational therapist and a studio flat in Windsor Court that had no second bedroom for a carer and described as unsuitable for housing vulnerable people by Caroline Lucas the MP for Brighton Pavilion.

Larissa Reed
Larissa Reed

Larissa Reed, Brighton & Hove Council’s Executive Director for Neighbourhoods, Communities & Housing, acknowledged to Meridian News on September 22, 2017 that Mr Carver had “significant care needs” but that the Council had been “clear all along” that his care needs don’t mean that he should have a two bedroom flat to accommodate his carer and they want “to work with Mr Carver to find him a suitably adapted one bedroom property.”

Meanwhile Mr Carver, who is HIV positive, is incontinent and needs round the clock care. As of July 26, 2017 he has been diagnosed by his consultant clinical psychologist as suffering from Post Traumatic Stress Disorder which relates to his neurological presentation with this diagnosis. In his medical opinion, the consultant recommends the best way forward is to rehouse Mr Carver in a two bedroom property with 24 hour care to support his needs, an assessment Mr Carver’s occupational therapist, specialist nurse, GP and hospital consultants all agree with.

The next stage in the campaign to get Mr Carver rehoused into suitable accommodation comes on October 11, when his case will be raised in the House of Commons.

In the meantime Mr Carver and his supporters have set up a charity called Still Human UK to help people in similar situations challenge similar injustices.

For more information and to make a donation to the charity, click here:

Darth Vader helps to raise over £1,800 at The Sussex Beacon’s Summer Fete

On Saturday, September 9, HIV charity, The Sussex Beacon held a Summer Fete in its garden on Bevendean Road, Brighton raising £1,829.34 to help people living with HIV.

Darth Vader and other Star Wars characters joined the fun as The UK Garrison, one of the leading Star Wars costume groups made an appearance.

Simon Dowe
Simon Dowe

Simon Dowe, Chief Executive of The Sussex Beacon, said: “Over £1,800 is an incredible total, which will all go directly towards our vital work supporting people living with HIV. Huge thanks go to everyone who came on the day – the entertainers, staff, volunteers and those who helped out by baking cakes. I didn’t think I’d ever find myself chatting over a cup of tea with Darth Vader, but it turns out he’s a nice guy when it comes to supporting a good cause!”

Stalls at the fete included traditional favourites including a coconut shy, hook a duck, whack-a-rat, face painting, a tombola and a raffle. As well as photo opportunities in the afternoon with the Star Wars characters, there was also entertainment from David Hill, David Raven and Keris Lea.

The Sussex Beacon provides specialist support and care for people living with HIV through both inpatient and outpatient services. It helps hundreds of people living with HIV in Sussex each year and was rated ‘outstanding’ by the Care Quality Commission in September 2017.

For more information about The Sussex Beacon, click here:

 

BOOK REVIEW: He’s Always Been My Son by Janna Barkin

He’s Always Been My Son

A Mother’s Story about Raising Her Transgender Son

Janna Barkin

This inspiring and moving story, told with great passion and gentle humour gives us the inside story of an extraordinary family. Barkin’s engaging and entertaining prose allows us to gather first-hand experience, frustrations, learning, insight and humour as they recount the emotional and uplifting journey of raising a transgender son.

Janna Barkin’s family has come a long way since their child, Amaya, first told them he was a boy and not a girl and this charming memoir charts the family’s experiences of raising Amaya, from birth through to adulthood.

The book shows us how it’s not just the parenting; but the friends, family, wider community and people living shared lives that all contribute to raising healthy and happy adults.  The books has may different points of view with chapters from Amaya’s grandparents, family and friends sharing personal stories of the support  and learning shared by the wider community and family.

Barkin wisely then brings all this learning and discoveries her family has encountered and provides a ‘care package’ of advice for families facing similar issues. There is a glossary of terms and a list of hand-picked support sources.

Written with warmth and humour, ‘He’s Always Been My Son’ reminds us to accept others for who they are, guiding us in how to support the development of young people into their full adult potential and will offer support and inspire anyone who reads it. Barkins’ story of her family and their adventures in life is wonderfully warm, fun and has a simple clear honesty about it that all parents will be able to connect wit. It’s a balance: the soft unconditional care of motherhood with the gentle academic sifting of hard granite truths from conventional (and unconventional) wisdom that allow gender questioning folk to construct their own firm foundations in life, elicit their own solutions to the problems presented to them and learn from this educator teaching from experience.

As she says herself in her heart-warming, shrewd and candid blog

I feel called to tell our story. Making the decision to go public was a challenging one. I certainly don’t want to put my son, myself, or anyone in danger. But I know my silence would not make the world safer for transgender people. My silence would not provide comfort to other parents, nor tell them they are not alone. And it’s more than that: by sharing our stories, we can give voice to the voiceless. Our family is fortunate for what we have, for where we live, and we are grateful. We have the strong support of our extended family and a wide circle of friends, a great number of loved ones who fully accept our transgender child. We have good jobs and good medical coverage. We are white. We live in an accepting community.

I am humbled to remember every day that not everyone shares these privileges.

Janna’s website is a warm and welcoming place for other parents to lean and use the collated resource’s that they have found over the last few years, although it has a continental USA bias (as the family are American). The info, advice and guidance work for all parents; it’s simple, loving and considerate.

Out now, paperback or e-book. 

£12.99

For more info or to buy the book see the publisher’s website here

 

 

 

Comedy at Dr Brightons for Rainbow Fund!

Smiley Sunday, a brilliant night of laughter and comedy is back at Doctor Brightons for its ninth outing on Sunday, October 8.

On the night there will be a fabulous raffle and happy hour prices at the bar all night as well as the buy 1 get 1 free cocktail deal!

There will be truly unmissable line-up of funny folk to entertain you! Including:

♦ William Stone
♦ Daniel Searle
♦ Karen Blott
♦ Tom Smith
♦ Josie Ellis
♦ Jen Ives

Headliner is Linda Larkin and the evening will be compered by Dave Fensome!


Event: Smily Sunday 9

Where: Dr Brightons,

When: Sunday October 8

Time: 7.30pm- 10.30pm

Cost: £3

Billboard advert homophobically abused in Washington DC

A billboard advert for gay hook-up app Squirt.org has been subject to an act of homophobic vandalism in Washington, DC.

The poster, which was located on the platform of Shaw-Howard University Station of the Washington Metropolitan Area Transit Authority, depicts two clothed men, one of whom has his arm around the other. The culprit defaced the image of the two men, placing rifle scope marks on their foreheads. They also wrote the word “gay” on one of the men’s arms, and a gay slur on the other.

Attila Szatmari, Digital Business Director for Squirt.org’s parent company, Pink Triangle Press, said: “We have never experienced this kind of homophobic vandalism on our billboards before.

“This is our first campaign in Washington, DC since the Trump administration came to power and it is very sad to see the change in behaviour. It seems that some people feel that it is okay to spread homophobic messages. The Trump Administration needs to work on uniting America and making sure that people feel safe, regardless of their sexual orientation, race, or religious beliefs.”

This isn’t the first instance of vandalism faced by Squirt.org posters. In 2016, a video surfaced of an ex-marine in Miami shattering the glass on a transit shelter to remove and destroy an ad for the company. It is, however, the first time slurs have been written across the posters.

As of yet no one has taken responsibility for the incident. The campaign will run until October 1 and Squirt.org intends to continue to advertise across the United States, including Washington, DC.

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